Another Few Weeks in Quarentine…

I bought a bath bomb kit to make my Mom a Mother’s Day gift. It was a fun gift to make.

Mother’s Day was really weird this year.  Mary Ann and I drove to my parent’s. Everyone was there Joel, Ashley, Luke, Mom & Dad. They stood the on deck and we visited, I stayed in the van. We social distanced for about an hour. It was really nice to see everyone. I really miss them. I hope this will go away really soon.

My roommates and staff went for a walk around Mirror Lake. It was really nice, the weather was great. I even had my picture taken sitting on the bench!

I have been using my mat to stretch out my body and work out. It seems to be helping an I like to do it.

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I went Dr. Parson’s and he fixed me up. My back was really out and I am really happy I went to see him. Thank you Dr. Parson’s!

I colored a butterfly picture one afternoon just one of the things I do to pass the time during this corona virus.

I put away my own laundry….check it out!

Nicky my staff did gel nails on my fingers. They look like the yahtzee game and yahtzee is my FAVORITE game. They look just like I went to the salon. Nicky did a great job!

Nicky also did my hair and I think it looks great, with my butterfly clip.

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I took my first selfie what do you think?!

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All About Autism Awareness

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I wanted to do an education blog on Autism to help people better understand individuals that have Autism. Two of my roommates have autism and I thought what a cool way to learn more about them.

I found some information about Autism on the Autism Canada website https://autismcanada.org/

Some interesting facts I found were:

We are all unique

Each person with an Autism Spectrum Disorder (ASD) is unique and will have different abilities. Symptoms caused by ASDs might be very mild in one person and quite severe in another.

Individuals with severe autism conditions may have serious cognitive disability, sensory problems and symptoms of extremely repetitive and unusual behaviour. This can include tantrums, self-injury, defensiveness and aggression. Without appropriate intervention, these symptoms may be very persistent and difficult to change. Living or working with a person with severe autism can be very challenging, requiring tremendous patience and understanding of the condition.

Individuals with mild autism conditions, however, may seem more like they have personality differences, making it challenging to form relationships.

The primary symptoms of autism include problems with communication and social interaction, as well as repetitive interests and activities.

Here are some of the characteristics that may be present.

Strengths exhibited by individuals with autism

  • Non-verbal reasoning skills
  • Reading skills
  • Perceptual motor skills
  • Drawing skills
  • Computer interest and skills
  • Exceptional memory
  • Visual Spatial abilities
  • Music skills

Weaknesses exhibited by individuals with autism

The above exceptional skills may be combined with subtle or significant delays in other areas of development. All individuals with the diagnosis demonstrate some of the following:

  • Impairment in social relationships
  • Deficits in communication/language
  • Perseveration on interests and activities
  • Dependence on routine
  • Abnormal responses to sensory stimulation
  • Behaviour problems
  • Variability of intellectual functioning
  • Uneven development profile
  • Difficulties in sleeping, toileting and eating
  • Immune irregularities
  • Nutritional deficiencies
  • Gastrointestinal problems

I hope that you have learned something about Autism and take the time to lean more by checking out the Autism Canada website for more information https://autismcanada.org/

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I wanted to know more about my roommate Kat’s life with Autism.

 

I did an interview with Kat. She lives in a suite on her own in the basement of the house I live in. Kat lives by herself but has support from Camrose Association For Community Living to do some tasks. Kat has become a good friend and hangs out with us. We have went on trips to Banff for my 22 birthday and we also went on a Disney Cruise together with my other roommate Theresa. Kat and I go out for coffee, walks, trips to Edmonton shopping and supper for birthday celebrations.

I came up with some questions with my CAFCL staff and we asked Kat if she wanted to be part of my blog and she said YES! Here is our interview….

Kelsey: How dose Autism impact your life?

Kat: Well, I don’t view it as Autism has affected me that much, it more just shows me how I can be independent person as I grow up.

Kelsey: Do you think people treat you differently or not because of having Autism?

Kat: Hard to say, when I grew up I found that people misunderstood me a lot. The biggest challenge was that I had a hard time understanding somethings. I feel that I have been judged a lot.

Kelsey: What kinds of things do you like to do?

Kat: Oh, gosh, I am a very busy person. But what I like to do is my cleaning at Centra Cam, and then after my job my favorite things to do are my daily cleaning, and then relaxing which is watching shows, check on shows, go for coffee and walks.

Kelsey:What are your favorite shows?

Kat: My favorite shows are: Grey’s Anatomy on Netflix, Game of Thrones

Kelsey: Do you like to travel, where have you all gone?

Kat: I really enjoyed New York. I have been to British Columbia and traveled through there; Kamloops, Salmon Arm and the Shuswap. I have also been to Montana, Disney World in California, Wyoming, North and South Dakota, Saskatchewan and San Diego when I went on the Disney Cruise.

Kelsey: What are some positive things that have happened because of Autism?

Kat: Oh goodness, I see myself independent and can manage many things on my own. I think a positive would be that I can manage my own finances and grocery shopping. Because of my Autism I was able to move into Team 12 which allows me to be as independent as I can be. I also am an educator at CAFCL as I educate new staff about Rights and Responsibilities of people with disabilities and Ethics of Touch.

Kelsey: What are some hard things about it?

Kat: Only thing is tough is when people get judgmental when they don’t know anything about autism sometimes.

Kelsey: I find people think that I can not do things because of my Cerebral Palsy. Do you find that is true for you?

Kat: I can do a lot of things by myself because I am independent, but I ask for help when I need it. I do not think people see how capable I am and how I can manage on my own. If I find things are too much sometimes then I will hold it for another day or I will speak up if I need help.

Kelsey: What are some proudest accomplishments?

Kat: That’s a hard one,took me a while to figure everything out, but managing my own finances and doing my own business on ledgers would be an accomplishment I am proud of. I am really proud of myself that I can do that. I am proud that I have gotten the hang of figuring out the ledgers and  I do ask for help when I need it. It took a few times to figure out how to not go over budget for groceries.

Kelsey: Pick 3 words that describe you?

Kat: Hard worker, flexible and trustworthy. Trust is very important to me.

Kelsey: What is a good memory from your childhood?

Kat: I do not remember much, I remember growing up and going to Wizard lake with my Dad and cousins.

Kelsey: What’s your favorite holiday?

Kat: Oh, gosh, I love holiday’s because that is the only time I can sleep in, New York is the best holiday I went on. I went to the Bronx Zoo, Empire State Building, The Statue of Liberty and I visited my roommate Theresa’s sister in Hudson.

I appreciate Kat taking the time to do my interview.

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I hope people understand Autism better and realize their is different types of autism. Like they said everyone is unique and you should’t judge people.

 

 

 

 

 

Hopping into Spring 2020

I want to share my faith story. I was born as a Christian child. We went to Sunday school and Sunday church service every Sunday. I went to Sunday school and when I was in high school I went to confirmation and then after my second year I gave my heart to the Lord. My friend Melanie was my aide when I was in confirmation. This is a picture of us. I had to write my favorite bible verse. Matthew 19:14 Jesus said, “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.” This is still my favorite verse!

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Every second I got I would go up and pray for God to heal me so I could walk one day. Into my second or my third year of going to Centra Cam the Lord told me that I should work on posters about different disability’s at Centra Cam. Kristy my staff at Centa Cam was in tears and very happy to be able to help me. This started a job for me at Centra Cam creating a learning board for staff and other individuals to learn about the topics I choose. I share those on here every once in awhile.

This Easter was really weird and difficult. Centra Cam sent some Easter egg art kits to my house and we decorated Easter eggs. This is my staff Alex and Emma helping me with the Easter egg decorating. Thank you Centra Cam so much for thinking of us!

Centra Cam also sent some Easter crafts to do. We made a yellow foam Easter egg and bunny. Alex and I taped some eyes, stickers and some pipe cleaners to decorate the egg and the bunny!

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Easter turned out really good even though I wasn’t with my family. But I do miss them so much!

When you have a new Staff member that was a hair stylist when she lived in the Dominican Republic, you get a lot of more different hair styles during the week. Nicky does a great job on my hair and I enjoy the new styles she gives me!

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One afternoon we did our own nail salon. I used my gel nail lamp and nail polish that my Mom got me for Christmas in high school. We did a pretty good job!

My Mom got a call from a Glenrose Hospital Doctor who is a specialist in CP and he said that I’m sitting too much in my wheelchair. He suggested said that I could get out of the chair and lay down for a few hours so I get a rest. If this doesn’t work I may need Botox shots in my back like I did in my legs when I was in kindergarten (I don’t really remember). We are doing this for a month and if nothing changes I may need to get the Botox. So far it feels really good, I am noticing a difference.

I use my new iPad and watch YouTube videos when I’m resting in my bed mostly Brett Young!!

I’m supposed to be getting a new power chair with the back that leans back. I am excited about that but it might take a long time to get!

We went through my spring and summer clothing and putting away my fall and winter clothes. This made me feel like Spring is here to stay!

Alex and I went on a hour walk around the neighbourhood. It is so nice to go and be able to walk without my chair getting stuck. I saw one of my old teachers Mr. Ofrim riding his bike and we had a social distance chat. It does suck when the sidewalk is bumpy but nice to be outside.

We Face-timed the other residences and played bingo with Roseclub. It was really fun. I got a Bingo and won a sunflower that we planted. I can’t wait to watch it grow.

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My mom brought my walker from Centra Cam so I can use it here at home. I race my roommate Theresa down our hallway. My staff put YouTube on in the background and once time they had a picture of Brett young and I ran to him. In really enjoy my time in the walker.

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